Jan 26, 2011

Summary of Jan 20 Warrenton Lyme Support Gp Mtg & Notes from VA Task Force Mtg on Jan 21st

Sent: 1/24/2011 7:26:10 P.M. Eastern Standard Time
Subj: summary of last Warrenton Lyme support group mtg on Jan. 20, 2011

Hi guys!
It was a great meeting! We talked about joining the National Capital Lyme and othe Tick-Borne Diseases Assoc. (Nat Cap Lyme). I realize that most of you don't know too much about Nat Cap Lyme. www.natcaplyme.org. I'm sorry that I didn't have their little blurb on how they operate and their foundation. I will try to get it. And I realized that we didn't vote on whether we would like to be in Nat Cap Lyme. Are you ready to vote on joining or would you like more time to research their association? Please email with your answer. I would like to make a decision fairly soon.
I gave out the "Lyme Disease Events for 2011" paper. Here's the info:
Jan. 21 - Friday, Gov. Bob McDonnell's Lyme Disease Task Force to conduct 2nd hearing
April 30 - Saturday, Winchester Orchestra "Beethoven and Blue Jeans Side-by-Side" concert benefiting Lyme disease research --- ILADS Foundation Tickets and Info - www.winorch.org
May 14 - Saturday, Warrenton Spring Festival, We had a booth last year and was quite a success. There will be no cost this year and Chris Pearmund has offered to help us.
May 15 - Sunday, Loudoun Lyme 5K, Cost is $30/person www.natcaplyme.org
July --- Fauquier Fair (don't know date)
September ---- Family Wellness Fair (held at the Fauquier Fair Grounds (don't know date)

I brought several articles.
* Analysis study of IDSA findings http://dx.doi.org/10.001/archinternmed.2010.482
* Dr. Gant from NIHA wrote an article on Functional Medicine is a 3rd Kind of Medicine dr-gant-news@aweber.com
* An article from the Frederick News Post wrote an article "Fort Detrick researcher may be sick from lab bacteria" www.wtop.com (dated Dec. 5, 2009)
* Check out www.LymeHope.com. Matthew Wood spoke on a teleseminar. It's open to the public. Next months speaker will be Dr. Klinghardt.
* I gave out a list of the many activities that Nat Cap Lyme did in 2010 www.natcaplyme.org
* Parents of kids with Lyme Disease meet the 3rd Wednesday of each month at LaMadeliene behind Tyson's Corner Mall off of Rt.123. Please RSVP so they have enough chairs.

Here are notes from the Lyme Disease Task Force meeting in Richmond, VA. on Friday Jan. 21. This meeting centered primarily on the issue of prevention.

* No questions from the audience were allowed at the meeting. Michael Farris and Dr. Hall will have sessions where the public may speak. I don't when those will be.
*Dr. Matt Pound, a research entomologist spoke. The nymph stage of the developing tick is the most likely to have lyme in it. He talked about the 4 poster feeder for deer. The deer are attracted to it because it has corn, but to get to the corn they have to put their head, neck and ears thru the 2 posters which have 10% permethrin on them. This gets rubbed onto the deer. This has a 97% rate of controlling ticks with pesticide. This 4 poster feeder must be serviced once a week. It costs about $800-$1500. It is suggested that a fence about 36-42" high be put around the feeder in a 30' diameter and it be electrified or put garden hose on top of the fence. You can get a book about Vector - Borne Diseases at mat.pound@ars.usds.org
It is illegal to put pesticides on wildlife in VA. You need a permit to feed wildlife. Permethrin stays on the skin of the deer; it doesn't get absorbed internally. Permethrin must be labeled specifically for white-tailed deer.

* Nelson Lafon
He recommended a book by Ostfeld and I think the title was Lyme Disease but I'm not sure. He said deer are browsers not grazers. A deer eats 3-5% of its body weight/day. Deer can live anywhere except cement. As the female deer ages she has more babies each birth. Deer management needs to involve removing the female deer. There is stuff called GonaCon which is injected into the female but that is expensive. He said there is not a strong relationship between deer population, tick population and lyme disease.

* Michael Farris said that families with children have a higher chance for lyme than families without children.

* Dr. David Gains from the Dept of Health talked about Lyme Disease Transmission. He said that only the black-legged tick transmits lyme. The state of Maryland is about 10 years ahead of VA. in lyme occurrance. Only Borrellia Burgdorgeri (Bb) is known to cause Lyme. The development of the tick goes like this: larva has a blood meal which it then grows to a nymph which has a blood meal and grows into an adult tick. Ticks prefer bucks over does. The nymph stage is the most likely to carry lyme. Ticks live about 2 years. Larvae are dormant in the fall and winter. Nymphs need at least 36 hours to transfer Bb but probably more like 48 hours.
* During the questioning period, Michael Farris asked Dr. Hall from the Dept of Health what the budget was for researching lyme disease. She said less then $20,000/yr. : (

* Dr. Charles Apperson from the Dept. of Entomology talked about interventions for controlling ticks and preventing Tick-borne Illnesses. He showed a sign that said "Tick Creek". Acaricides are insecticides that kill ticks. Acaricides can be applied with a high pressure sprayer. They will be effective for up to 12 weeks. One deer can have several thousand ticks on it. There is an experiment in PA. to develop a vaccine for lyme in mice. There has been an exponential increase in deer from 1800's to 2000. He said that Lone star ticks transfer lyme, not deer ticks. Lone star ticks can produce a dermal rash similar to the Erythema migrans rash but it is different. You can get a tick handbook at: www.cdc.com

* Dr. Kerry Clark, an entomologist, spoke on the investigations of Lyme Disease-like illness in southern U.S. He said that Lyme disease is the most common vector-borne disease in the U.S. There are greater then 20,000 cases/year. There are 15 or 16 species of Bb worldwide. The CDC definition for a lyme disease case was developed for national reporting not diagnosis. The entire state of Florida is endemic for lyme disease. He tested a person's blood and it was negative for lyme disease. He froze that blood and then tested it and was positive for lyme disease. He then tested the patient again for lyme disease and it was positive. That makes ya think don't it!!!!!!!!!!!

PLEASE remember that these are my notes. Please don't take them as truth in cement. I came away confused about several things. Joyce

Dec 14, 2010

Warrenton Lyme Support Group Christmas party Thurs. Dec. 16 at 7pm at 6398 Lee Hwy Access Rd (Church of Christ)

Lyme Disease is sooo serious. We see loads of doctors, spend thousands of $$$, drop out of school, lose our jobs, tax our family to the hilt and so...... we are just going to get together and celebrate that we are together and accommplished alot in the way of lyme awareness and lyme disease knowledge. We have much to be thankful for. Come join us for some encouragement, goodies, and time to share. We will have some games, goodies, and lots of sharing. Sure hope to see ya there! Joyce

Aug 31, 2010

Dr. Wm. Lee speaking on lyme biofilms

The Warrenton Lyme support group meeting is Thursday, Sept. 16 at 7pm at the Warrenton Church of Christ, 6398 Lee Hwy. Access Rd. (across from the Comfort Inn on Rt 29).
Our guest speaker will be Dr. Wm. Lee who will be speaking on lyme biofilms. Hope to see you there. Joyce

Jul 13, 2010

Warrenton Lyme Support Group participating at the Fauquier Fair July 15-18

Our Warrenton Lyme Support Group will be at the Fauquier Fair this Thurs. - Sunday July 15-18, 2010. We are sharing a booth with the Marshall Environmental group. Please come learn what lyme disease is all about. It could be the answer to your symptoms. We will have brochures and info about our support group and doctors that we would recommend.

Jul 1, 2010

monthly meeting NOT at Church of Christ for July

Please note that our monthly Warrenton Lyme Support group meeting will be Thurs. July 15 at 7pm. Our location has changed JUST for this month. We will be meeting at the Warrenton Bible Fellowship 46 Winchester St. (white church close to the library). The meeting will in the townhouse connected to the church. The entrance is on Winchester St. Hope to see you there! Joyce

Jun 8, 2010

Politics of Lyme Disease June 13, 2010

Sunday, June 13, 2010
National Capitol Lyme and other Tick-Borne Disease directors Greg and Monte Skall will be speaking in Warrenton at the Warrenton Bible Fellowship Church 46 Winchester St. Warrenton, VA. at 2pm. Come join us to learn about the POLITICS of lyme disease. You can learn more about National Capitol Lyme Disease and other Tick-Borne Diseases at www.natcaplyme.org
Sunday, June 13, 2010